ESSENTIAL READING
- “In Bed” by Joan Didion, (1968), in The White Album, 1990
- Migraine Facts from The National Headache Foundation
- “Argh…Trigger is not Cause. Don’t Let Them Get Away with It “by William B. Young, MD
RESOURCES
- American Migraine Foundation (AMF)
- AMF list of Migraine Bloggers and Associations
- CHAMP: Coalition for Headache and Migraine Patients
- Headache: Journal of Head and Face Pain
- Migraine.com
An online community of experts and patients - Migaine Again
- Miles for Migraine
- National Headache Foundation
- The Migraine Diva
- Migraine Language Guide (Migraine Australia)
BOOKS
- Invisible Kingdom: Reimagining Chronic Illness by Megan O’Rourke. Read an excerpt.
- Not Tonight: Migraine and the Politics of Gender and Health by Joanna Kempner
- All in My Head: by Paula Kamen
- Migraine: A History by Katherine Foxhall
(free download from Project Muse) - So Much More Than A Headache: Understanding Migraine Through Literature by Kathleen O’Shea
- Child Pain, Migraine, and Invisible Disability by Susan Honeyman
- A Brain Wider Than The Sky by Andrew Levy
ARTICLES
- 10 Ways Migraine is Not “Just a Headache” by Kerrie Smyres, migraine.com
- Living With an Invisible Disability by Imani Perry.
- There Has Never Been a Better Time to Have a Headache by Tom Zeller Jr, New York Times Sunday Review
- “Women’s Emotions Do Not Cause Their Migrianes,” by Joanna Klein, featuring my Migraine Register project
- “Five Things I Wish I’d Known Before My Chronic Illness” by Tessa Miller
- “De-Stigmatizing Migraine – With Words” by Wiliam B. Young, MD (and look for more from Dr. Young on migraine.com)
- What Is Migraine? World-Leading Doctor Answers Your Questions
- “Every Body Goes Haywire” by Anna Altman
- “13 Things Not to Say To Someone With A Migraine” by Laura Schocker
- “I Don’t Know How You Do It” by Tammy Rome
- “Kids Who Go To School In Pain” by Nancy Darling
- History and Timeline of Migraine Treatments
- The New York Times Migraine Blog (2008)
WEBINARS
- Women Navigating Wellness Across the Lifespan from the Society for Women’s Health Research
- CHRONIC LIFE: CAN WE GO THE DISTANCE WITH THE VIRUS? Roundtable with Alexandra Juhasz, Theodore Kerr, Lorie Novak, & Meghan O’Rourke. Moderated by Laura Wexler, 2022

FILMS ABOUT CHRONIC ILLNESS
- Out of My Head: Migraine, Not Just a Headache
A documentary film by Jacki Ochs and Susanna Styron - UNREST, a personal documentary film by Jennifer Brea about her struggle with ME/chronic fatigue syndrome. [more info]
- Crip Camp: A Disability Revolution, Directed by Nicole Newnham & Jim LeBrecht
- 7 Documentaries to watch after Crip Camp
PHOTOGRAPHY PROJECTS
- The Nightstand Collective, An Exploration Of Chronic Illness Through The Intimate Space Of The Bedroom Nightstand, by Emma Jones
- Positive Exposure, by Rick Guidotti
- Patricia Lay-Dorsey (AKA Grandma Techno) on Instagram
MORE ABOUT MIGRAINE REGISTER
- Migraine Register, CHRONIC LIFE: CAN WE GO THE DISTANCE WITH THE VIRUS? Webinar with Alexandra Juhasz, Theodore Kerr, Lorie Novak, & Meghan O’Rourke. Moderated by Laura Wexler, 2022
- Video interview: NYU Center for the Humanities
- Fast Forward: Women in Photography Online Gallery
- Migraine Register on Instagram
I could list so much more. Please feel free to email me with suggestions for this page at lorie@migraineregister.net
#migraine #notjustaheadache #migraineawareness #invisibledisability #chroniclife #healthcareisahumanright