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MIGRAINE REGISTER

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  • ABOUT
  • RESOURCES
  • LORIE NOVAK
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ESSENTIAL READING
  • “In Bed” by Joan Didion, (1968), in The White Album, 1990
  • Migraine Facts from The National Headache Foundation 
  • “Argh…Trigger is not Cause. Don’t Let Them Get Away with It “by William B. Young, MD
RESOURCES
  • American Migraine Foundation (AMF)
  • AMF list of Migraine Bloggers and Associations
  • CHAMP: Coalition for Headache and Migraine Patients
  • Headache: Journal of Head and Face Pain
  • Migraine.com
    An online community of experts and patients
  • Migaine Again
  • Miles for Migraine 
  • National Headache Foundation
  • The Migraine Diva
  • Migraine Language Guide (Migraine Australia)
BOOKS
  • Invisible Kingdom: Reimagining Chronic Illness by Megan O’Rourke. Read an excerpt. 
  • Not Tonight: Migraine and the Politics of Gender and Health by Joanna Kempner
  • All in My Head: by Paula Kamen
  • Migraine: A History by Katherine Foxhall
    (free download from Project Muse)
  • So Much More Than A Headache: Understanding Migraine Through Literature by Kathleen O’Shea
  • Child Pain, Migraine, and Invisible Disability by Susan Honeyman
  • A Brain Wider Than The Sky by Andrew Levy
ARTICLES
  • 10 Ways Migraine is Not “Just a Headache” by Kerrie Smyres, migraine.com
  • Living With an Invisible Disability by Imani Perry. 
  • There Has Never Been a Better Time to Have a Headache by Tom Zeller Jr, New York Times Sunday Review 
  • “Women’s Emotions Do Not Cause Their Migrianes,” by Joanna Klein, featuring my Migraine Register project
  • “Five Things I Wish I’d Known Before My Chronic Illness” by Tessa Miller
  • “De-Stigmatizing Migraine – With Words” by Wiliam B. Young, MD (and look for more from Dr. Young on migraine.com)
  • What Is Migraine? World-Leading Doctor Answers Your Questions
  • “Every Body Goes Haywire” by Anna Altman
  • “13 Things Not to Say To Someone With A Migraine”  by Laura Schocker
  • “I Don’t Know How You Do It” by Tammy Rome
  • “Kids Who Go To School In Pain” by Nancy Darling
  • History and Timeline of Migraine Treatments
  • The New York Times Migraine Blog (2008)
WEBINARS
  • Women Navigating Wellness Across the Lifespan from the Society for Women’s Health Research
  •  CHRONIC LIFE: CAN WE GO THE DISTANCE WITH THE VIRUS? Roundtable with Alexandra Juhasz, Theodore Kerr, Lorie Novak, & Meghan O’Rourke. Moderated by Laura Wexler, 2022
FILMS ABOUT CHRONIC ILLNESS
  • Out of My Head: Migraine, Not Just a Headache
    A documentary film by Jacki Ochs and Susanna Styron
  • UNREST, a personal documentary film by Jennifer Brea about her struggle with ME/chronic fatigue syndrome. [more info]
  • Crip Camp: A Disability Revolution, Directed by Nicole Newnham & Jim LeBrecht
  • 7 Documentaries to watch after Crip Camp
PHOTOGRAPHY PROJECTS
  • The Nightstand Collective, An Exploration Of Chronic Illness Through The Intimate Space Of The Bedroom Nightstand, by Emma Jones
  • Positive Exposure, by Rick Guidotti
  • Patricia Lay-Dorsey  (AKA Grandma Techno) on Instagram
MORE ABOUT MIGRAINE REGISTER
  • Migraine Register, CHRONIC LIFE: CAN WE GO THE DISTANCE WITH THE VIRUS? Webinar with Alexandra Juhasz, Theodore Kerr, Lorie Novak, & Meghan O’Rourke. Moderated by Laura Wexler, 2022 
  • Video interview: NYU Center for the Humanities 
  • Fast Forward: Women in Photography Online Gallery
  • Migraine Register on Instagram
 
I could list so much more. Please feel free to email me with suggestions for this page at  lorie@migraineregister.net

#migraine #notjustaheadache #migraineawareness #invisibledisability #chroniclife #healthcareisahumanright

 
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